...Previous Entries

Carrie Gagliardi
Carrie Gagliardi died on March 31, 2008 in Fort Bragg, California, with her lover, Julie Apostolu and friend Esme Moriera at her side. Carrie was active in AC Transit's Accessibility Advisory Committee and many other advocacy efforts. She will be missed by many people in the San Francisco Bay Area, and through out the world. [Mary Marshall Fowler & Jim Gonsalves. Alameda, CA]
Keith Gann
St. Paul, MN
Laura Garcia
Colorado Springs, CO
Larry Gardner
Berkeley, CA
Bonnie Gellman
Philadelphia, PA
Sue Glover
[Jonathan Gold]
Loy Golladay
Loy Golladay, a long time educator, and one of the pioneering teachers at the NTID, passed away last week. His list of lifelong accomplishments is too long to be posted in the DEAFDIGEST, but one thing can be said - he was much loved by everyone. [Barry Strassler, Editor, DEAFDIGEST]
Russell Gonzales
Denver, CO
Ida Ferraris Gonsalves
Jim Gonsalves' mother, Ida Ferraris Gonsalves, died in Bakersfield shortly before Christmas, 1999. We'll have to see about doing a web page for her. She worked on establishing a school, Sunrise, then later, Sunset (after the school moved), for children with cerebral palsy in Hayward back in 1948-49. This was during the days when kids with CP weren't allowed to go to regular schools. Her son,Jim, who has cerebral palsy. did not attend any mainstream schools until he took a class at the community college in Bakersfield. [Mary Fowler, Alameda, CA]
Robert Grantham
Former member of the Berkeley Commission on Disability.
Daryl Grauer
Daryl was the first disabled woman I met when I came here in '77 [Cheryl Marie Wade]
Fred Greasby
Fred Greasby died on Saturday, January 1, 2000. Fred was one of the Wisconsin's leading advocates for people with disabilities. He recently completed a 9-year term as a founding member and Chair of the Wisconsin State Independent Living Council. Until his death, Fred was Vice-President of EBTIDE, a Wisconsin consumer-controlled organization focused on the economic empowerment of persons with disabilities, President of the Wisconsin Academy for Graduate Service Dogs, Board Chair of the Lake Area ALANO club, and a Director on the Board of Independence First in Milwaukee. He was employed as an Impartial Hearing Officer by the Wisconsin Division of Vocational Rehabilitation where he also provided volunteer consultative services.
It was my privilege to work closely with Fred in several projects, including the elections of '96, where he was an effective national leader for the Clinton campaign. He was also working with me on my current writing: "The Revolution of Empowerment." I was fortunate to have had a long face to face meeting with him just last August.
Fred Greasby was a brilliant, passionate soldier of justice. His contributions will live as long as humans struggle for better life.
Fred, we are proud of you, we love you.
Lead on. [Justin and Yoshiko Dart]
Judy Greenwood
Graduate student in the U.C. Berkeley English Department, Member of the old Alameda County Paratransit Coordinating Council, Poet, Writer.

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Steven Handler-Klein
Steve was a volunteer at the Center for Independent Living in the mid-70's and a contributor to The Independent, CIL's national, quarterly publication. Steve was an artistic person with a love for photography. He died of multiple sclerosis. During the 504 sit-in, Steve wrote the lyrics to two disability civil rights songs. He stayed for the 25 day sit-in even though his health was not good. He spent much of the time lying on his mattress recording on audio tape what he observed around him. According to friends, Steve knew the sit-in was terribly important and he could not bear to miss being a part of it. [Ken Stein]
Elizabeth Harricks
Known and loved by many people who worked with her, Libby was a tireless advocate for people with hearing impairment and people with disabilities in general. She worked on a number of significant projects relating to DDA Standards and disability discrimination in general. [Rose Ross]
Elizabeth Hastings
Australia's first - and probably only - Disability Discrimination Commissioner, Elizabeth was affected by polio as a baby, which left her in a wheelchair. But that didn't stop her from becoming an honours graduate of the University of Melbourne and going on to many other great achievements. Her belief that people with disabilities should be included in all community business and activities was a driving force in her life. She spent seventeen years working as a student counsellor with the counselling unit at La Trobe University, after an earlier stint with the Commonwealth student counselling service. A passionate believer in approaching the rights of people with disabilities from a human rights perspective, at the age of 32, she was appointed a part-time member of the first Human Rights Commission in Australia. In 1992 she was appointed a full-time member of the Human Rights and Equal Opportunity Commission (HREOC), with the particular responsibility of implementing the Disability Discrimination Act (DDA).
In the obituary published in The Australian, her old friend Kevin O'Connor stated best the contribution she made while with HREOC. "Under her influence, the Human Rights and Equal Opportunity Commission carved out new ground in the protection of human rights. Interim orders were made to stop the building of railway stations where the plans appeared not to provide reasonable access for people with disabilities. Telstra was ordered by the commission to provide special telephone facilities for people with disabilities at the same price paid by everyone else. Hastings' preferred course always was private negotiation rather than public rhetoric or legal proceedings." Elizabeth Hastings' untimely death, a year after the Federal Government decided not to appoint a Disability Commissioner to succeed her, is a blow to the disability rights movement. But she would be pleased to know there are other disability advocates ready to take up the charge. [David Morrell, edited by JN]
Herbert Hauer
Herb had ALS, Amyotrophic Lateral Sclerosis, or Lou Gehrig's Disease. Herb drove his power chair with a chin control that rested on a swinging arm that could bring the control to his face and chin. His wife, Rose, still lives in Berkeley, as do two of his sons. His third son now lives in Santa Fe, New Mexico. Before the onset of ALS, which disabled Herb in his thirties (he lived to see sixty), Herb taught mathematics. Herb had a great love of good food, classical (and other) music, mathematical discussion, and the opposite sex, though perhaps not in that order <g>. [Jonathan Gold, Berkeley, CA]
Alan Hayden
[Jonathan Gold]
Paul Hearne
President of the Dole Foundation, President of the American Association of People with Disabilities, former Director of the National Council on Disability, died yesterday in Washington, D.C. He was a pioneer of equality in employment, ADA and united advocacy. He is the father of the American Association of People with Disabilities. [JFA]
Carol Henry
Chicago, IL
John Hessler
Sacramento, CA
Ilsa Heumann
This truly magnificent human being overcame the horror of Holocaust to live with joy and to communicate the joy of life to all. She produced one of the great patriots of American history, her daughter Judy. [JFA]
Werner Heumann
Brooklyn, NY
Mary Anne Hiserman
Mary Ann was the first wheelchair user to graduate from the UC Berkeley Master of Architecture Program, in about 1980. She was one of the first wheelchair users to become a licensed Architect in California. She was a expert on disabled accessibility codes and was a tireless advocate for accessibility rights. She worked from 1979 until her death in 1997 for the UC Berkeley Department of Planning, Design, and Construction. She was more responsible than any other person for the evolution of physical accessibility on the Berkeley campus. She also worked as a disabled access consultant on numerous projects, including service as a special mediator in providing access to the Berkeley Unified School District's facilities. She understood "universal design" probably as well as anyone, years before the term came into being. [Logan Hopper]
Alice Hodges
Dear Friends: My Mother, Alice Hodges, died this evening at 11:52 p.m. I was privileged to be with her until an hour before her death. Thanks to all of you who have given me your love and support. She was a great woman, from whom I have drawn my qualities of independence, fierceness of heart and spirit and love. Thanks, Mom. You're the best. Love, Sue [Sue Hodges, 99-05-11]
Roseann Hoffert-Baker
Roseann Hoffarth-Baker was the Secretary of Alameda/Contra Costa Democrats with Disabilities for 4 years. She ran a unlicensed Board and Care home because she didn't believe in the demands the state placed on Board and Care owners. She expected each resident to do their share in/around the house and that everyone was active in some way during the day. Roseann was the best cook and baker...anyone living with Roseann loved her...and her husband Robert. Their needs were met far beyond anything they could find in the licensed Board and Care world. She worked as an IHSS provider for 8 years...and when a person didn't have the money to pay her to clean their home she volunteered to clean their home. Three people were prevented from being incarcerated. She set her own needs aside when anyone needed her help...she had the uncanny ability to bring joy into people's lives when people thought their lives were crumbling all around them. It was a privilege to call her a good friend. She will be sorely missed.
Roseann, The scope of love you extended to all of us through your action...and not your words will keep you in our hearts over the years. You were always there as a friend when called upon. You faced insurmountable family odds as your family struggled to dig their way out of a "dysfunctional" status...and only digging their way deeper into life's darkness. Somehow you managed to rise above it. You were a profoundly warm and generous person with your time and willingness to bring a person a moment of happiness. I shall miss you...especially your "just checking in" calls... but your spirit lives on to which I shall frequently call upon. [Maggie Dee]
King Hovey
King Hovey was a man with cerebral palsy who lived in Berkeley since 1981. He was born and raised in Corry, PA, a small town in the Northwest corner of the state. Most recently, King was a member of the Board of Directors of Easy Does It, Berkeley's emergency attendant service. He was also active in the recent Measure E campaign which obtained permanent funding for Berkeley's emergency services for the severely disabled. [Blane Beckwith]
Howie the Harp
Tireless advocate for the rights of the mentally ill, Howie was a national leader in the movement. More information can be had from Sally Zinnman at the California Network of Mental Health Clients. [Jerry Rhodd] [Still trying to find Sally Zinnman for information -- JN.]

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Stephen Theodore Ingerson, Jr.

Most regular ADAPTers did not know Steve Ingerson who showed up irregularly on 'Crip-Chat,' a nightly chat Bunny McLeod and I moderate. He was 14 and had a high neck fracture and other complications of an auto accident back a couple of years ago. If ever we should have a "poster-child," Sti--as he was wont to use for a handle--should be one. Sti worked out on his own that he had to fight stereotyping and ableism. Not just on one day but every day...Sti fought most all of his battles alone, protesting patronizing care givers and health professionals who wanted most for Sti's parents to put him in an institutional setting for 'his care and comfort'. His struggle for acceptance and remaining in his own home were daunting and relentless... His parents too supported Sti in every struggle... Sti made it to his first ADAPT action this May, and participated in what had been a many months goal of his. He saw disabled people direct their own care, come and go as they wanted--the promised land indeed for a boy in a powerchair.

Sti, I don't know if there is an afterlife, but son if anybody has earned a place where there are curb-cuts everyplace you want one, health care providers that speak to you like you have ears and are adult, you have earned that place. Sti participated in all three days of actions, returned home and passed away Sunday the 23rd of May, 1999 from complications of his seizure disorder. Rest well son, your race is run. And run well indeed. [Tom Cagle]

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Lee Jackson
Atlanta, GA
Leo Jacobs
Long time educator at California School for the deaf at Berkeley, he was outspoken on the rights and needs of the deaf. [Barry Strassler]
Sandra Jensen
A woman with Down's Syndrome, Sandra was an activist, a woman who'd spent years on the front lines as a freedom fighter. Because of her experience, her connection to community through activism, she was not alone, not at the mercy of the white coats' institutional medical bigotry. She had resources to fight-- the most important tools of all: knowledge of her rights and allies to fight with her. She fought. WE won. Sandra had an extra year of life in which to educate and agitate, in spite of the Medico's refusal to consider her for a life-saving heart-lung transplant. An activist freedom fighter to the last breath. [Cheryl Wade]
Ronald Jerrell
Owensboro, KY
Bob Johnson
[Jonathan Gold]
Donald Johnson
A resident of Berkeley and a member of the Access BART Coalition, it was Don Johnson's death that sparked the community response which resulted in this memorial page. [J. Nandi]
Ralph Jordan
Ralph V. Jordan passed away at the age of 77 on October 4, 1999. He was a long time teacher at California School for the Deaf at Berkeley but this is not his claim to fame. He was one of the founders of the DCARA and served the agency as its first Executive Director. Moving on - he helped set up the Deaf Program at Ohlone College. Ralph is one of these unsung deaf heroes - that we do not hear much about - but those that have accomplished so much on our behalf. Interestingly enough, after he graduated from University of Arizona, he wanted to pursue masters' at Gallaudet but couldn't. Gallaudet, at that time, had a policy against admitting deaf students to graduate programs! [Barry Strassler, in DeafDigest]
Jeanie Joyce
Denver, CO

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Antwine Kelley
Denver, CO
Evan J. Kemp, Jr.
As chairman of the Equal Employment Opportunity Commission, he helped shape the landmark Americans with Disabilities Act of 1990. He had to take a government job in 1964 because nobody else would hire a disabled lawyer. After leaving the EEOC, he founded Evan Kemp Associates, Inc., a Washington-based medical equipment and supplies, sports equipment and transportation systems company owned and operated by disabled people, and he edited and published the very practical and much-missed newspaper, One-Step-Ahead. In speeches and newspaper editorials, Mr. Kemp expressed his beliefs that society should end what he called its paternalistic approach in developing programs to aid disabled people. He argued that many government programs fostered dependence, disability and isolation, since they were designed on the mistaken assumption that the disabled cannot work. He advocated initiatives that emphasized opportunity to work, self-reliance and responsibility. [Rus Cooper-Dowda, Diane Coleman, JFA]
Julia Kendall
We lost Julia on July 12, 1997. She had been sprayed in the late 80s with malathion in Southern California while driving a convertible. Her body's reaction was to go into luekemia, which eventually took her life. Up until the end, she worked to get the word out to others about the poisons we were using daily on our bodies and around our houses, schools and workplaces, health care facilities, places of worship . . . Those poisons are commonly used and highly advertized fragrances and pesticides. [Barb Wilkie]
For links to Julia's life and some of her work please go to
June Kessler

A gentle woman passed from us January 6, 2000 -- June Kessler. June was 71 years old at her passing. She earned a master's degree in English literature from the University of Wisconsin at Madison and taught English at a Junior College in Chicago until 1977 when she and her husband Ralph moved to the Bay Area. June became disabled in 1967 after sustaining a broken hip. She survived a stroke during emergency hip surgery.

June started broadcasting, "Fighting Back" on KALW-FM 20 years ago; then the program moved to KUSF, 90.3 FM. Mr. Kessler, June's husband and June traveled by public transit each Sunday from Berkeley to San Francisco to air issues as they relate to disability and seniors. June interviewed, as Host of the program, hundreds of people dealing with civil rights regarding education, accessible transporation, affordable/accessible housing, employment, disaster planning, state and federal legislation issues. Ralph Kessler will remain Founding Producer and June, Founding Host of KUSF, 90.3 FM "Fighting Back."

We will miss your vivacious quality on the air...and your determination to Fight Back the injustices which face us all. [Maggie Dee]

Lynn Kidder
Lynn Kidder was the Public Relations Director at the Center for Independent Living at the time of the 504 sit-in. Immediately recognizing the importance of the demonstration and of CIL's opinion, she put out press releases, ran back and forth to the UN Plaza in San Francisco, supported the sit-in in countless ways. In her three years at CIL, Lynn wrote articles on transportation, education, and architectural barriers. She drafted speeches, put out the newsletter, developed the Friends of CIL, coordinated a fleamarket and raffle, persuaded singer Malvina Reynolds to appear for a CIL benefit, and researched material for several television documentaries on disability. Not least, she set up the billing system for the wheelchair repair service. After obtaining a master's degree in Journalism at the University of California at Berkeley, Lynn went on to be a reporter for The Merced Sun-Star, The Antioch Daily Ledger, The West County Times, Contra Costa Times, and the Oakland Tribune. Her intense interest in issues of justice surfaced frequently in her journalistic career, and she continued to write about disability issues through the years. Fluent in Spanish and knowledgeable about Latin American culture, Lynn reported from the scene of a major earthquake in Mexico City, and covered migrant issues for 15 years. In 1988, Lynn joined the Public Information Office at UC Berkeley, where she tackled complex issues such as the debate over admissions policies, and in 1990, Lynn became a speechwriter again, this time for Chancellor Chang-Lin Tien. Her work waspublished in Newsweek, The Los Angeles Times, and The New York Times. Lynn died from breast cancer in July 1996, at age 46. Her memorial at the University was spoken in three languages, a moving tribute to the depth of her understanding and integrity. Her quick wit, wonderful laughter, and rich insight were gifts to us all. [Ken Stein]
Edward T. Kilcullen

Edward T. Kilcullen, a Marylander, passed away on January 6th [2000]. Though not hugely known in the deaf community, he remains an Icon - while serving as the coordinator of services for the deaf in the state vocational rehabilitation he made a huge impact. He helped establish the deaf education program at Western Maryland College. Many deaf graduate students have become teachers at schools and programs for the deaf.

And he worked with the Civil Service Commission to design post office exams tailormade for deaf applicants. Nowadays we are seeing few thousand deaf people employed by the US Postal Service. [Barry Strassler, Editor, DeafDigest]

Peter Kirsche
Portland, CT
Eddie Kliss

He was a role model for me when I was an adolescent pondering independent living in the late 70's. We met at an MDA summer camp. He was an architecture student at UC Berkeley and lived on his own. This encouraged me to believe I could do it too. Eddie went on to be a computer programmer, and before he died enjoyed horseback-riding with a passion. Once he visited me in the hospital and described how riding made him feel like he was flying; as though his heavy bones would hollow and grow long and thin like a bird's. Then he would imagine stretching out his wings with muscles that were no longer weak and heavy. I was touched that he shared this bittersweet fantasy with me. We both experienced great frustration in our relationship with gravity, but also shared the powerful gift of knowing how rich life can be when we pay attention. [Alana Theriault]

Eddie was one of the dearest men I've ever known. Kind, warm, sincere, loving, affectionate...I wrote this poem about our friendship. I shared it with him for the first time over lunch at Racha Thai restaurant, one ordinary day like no other, treasured moments with a treasured friend. [Cheryl Marie Wade]

              by Cheryl Marie Wade
       Our lips yes
       kiss kiss
       a joke about the weight loss
       his hands
       One day soon
       lunch will be soup with a straw
       or attendent feeding
       That's life, he says.
       We adjust.
       Yes? I say, and
       fumble for the wine
       Red drops bleed on white cloth--
       pink carnations
       Pretty earrings, he says.
       I fan the one I can reach yes
       aware my fingers are like gristle
       his muscles sponge
       his eyes cerulean
       his lips
       our lips

Glenn Kopp
Denver, CO
Dave Kovalenko
[Cheryl Marie Wade]

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Larry Langdon
Berkeley, CA
Donald Laurence
Berkeley, CA
Gini Laurie
St. Louis, MO
Diana Lauterbach
Diana was a marvellous advocate. She cut her teeth learning how to deal with LAVTA, the Livermore-Amador Valley Transit Authority. They each had much to learn. Diana went on to serve on PAPCO, the Alameda County Paratransit Advisory and Planning Committee. She attended BART Accessibility Task Force meetings. She was appointed to serve on the Public Authority for IHSS Advisory Board. She provided a resource for many many seniors and people with disabilities living in the Valley. Diana gave countless hours counselling others and improving their lives by finding resources to solve problems. She set a high-water mark for graciousness, kindness, courtesy, wisdom, generosity, fearlessness, toughness, fairness, righteous anger, and strength. She was never afraid to take on a fight and never afraid to win it. She was able to engineer win-win situations without losing ground. Diana threw herself into life with an exuberant enthusiasm that was her unique characteristic. Farewell, my sister. I will miss your voice calling me up and asking me how I am. And then jumping into the issue of the day. I will miss your unstoppable sense of humor and mandatory daily jokes. Diana never had a conversation without one. We will miss you more than these words can convey. [Sue Hodges]
Robin Leach
Robin Leach was a long time PWD advocate here in San Diego area and friend of mine. She died suddenly on December 17, 1999 at her home. [Dr. Clyde "Pete" Shideler]
Mike Lechner
Topeka, KS

Lee's addition will be a bit unusual as I don't remember his last name, but in the 18 days of his life, he had a big impact. He died many years ago, in the midst of the battles of the baby Doe controversy of the mid 80's. Lee was born with anencephaly. He was not expected to live long, and his parents were offered to have nutrition and hydration withheld, to hasten his death. They were also offered to have him remain in the hospital, behind a curtain, to die in the sterile environment of the neonatal intensive care unit.

Instead, his parents brought Lee home and reached out to the disability advocacy community for support. Our community was quick to welcome him for as long as he would be with us. We provided his parents with lots of support and we all treated him as the wonderful gift every new baby is. After eighteen days, Lee died in his parents arms. He was loved by many people, and his life was important. I will never forget my little friend who taught a lot of people about the value of life, love and community. [Marcie Roth]

Joan Lee

Releasing her Spirit from the world as we know it to the winds of time at Fort Kronkite, California 2008 Joan has returned in times of great need. She brings with her, visits ringing of wind chimes when no wind is present to answer silent questions rumbling through my thoughts. Counting on the friendship in both worlds, now one, Joan always left decisions up to those who paused wondering, "Which way shall I go?"

Her confidence that we will make the right decisions was always present; she was right every time.

Because of Joan, I learned more about independence I'd not considered before, a refining of what I had been living; earned the path to friendship and the joys of same.

A quiet moment after shared legislative advocacy whether successful or questioned if we made a true mark on those we just visited, it did not seem to matter for a brief exhausted moment because we knew that on the morrow we had more work to accomplish, more people to talk with...a moment that eve to share poetry, our thoughts, it mattered to those we spoke about...our brothers and sisters.

Brothers and sisters were Joan's reason to push herself to exhaustion. Bone weary, Joan said, "Tomorrow is another day and so few remain." Sometimes we talked about..."If we knew when we were young what we know now how much could have been done. Just as quickly as it was said we agreed looking back on what could have been took too much energy needed for tomorrow's challenges.

Yes, on that warm windy day when I emotionally released Joan's Spirit to the world so new to her, I felt a freedom from sadness--and welcomed a new brand of friendship--a new drive to accept my cancer, to be treated as I moved into a new reality--a new life with my friend Joan at my side all the way! When others made commitments how hollow they; tis when one accepts the realities and commitments made that the Spirit rises above all else to comfort. Joan NEVER broke a promise or a commitment made...her most endearing traits. Rare in every way, never to judge rights from wrongs granting people the freedom to share what they wished no matter how different from Joan's views it might be. [Maggie Dee]

Helen P. Levin
Los Angeles, CA
David Lewis
often of Berkeley, CA [Jonathan Gold]
Joyce Lingor
Joyce Lingor, long time disability advocate passed away on the eve of January 24, 2000. Even though she was in her mid 70s, her mind was sharp as a pin. She had been in the hospital off and on since last Summer after having major abdominal surgery. Joyce worked as a nurse for many years and was a veritable wealth of knowledge regarding medical issues and disability access. She held the noble post of CDR (Californians for Disability Rights) Parliamentarian with our Chapter-17, covering the East San Gabriel/Walnut/Pomona Valleys. Joyce's presence will be sorely missed by all who knew and loved her. [Tadd H. Small]
Bradley Lomax
Brad Lomax was a quiet, Oakland resident who was a member of the Black Panthers. In the summer of 1975, he approached Ed Roberts, then director of the Berkeley Center for Independent Living, to open a satellite CIL in east Oakland which would work in conjunction with the Black Panther Community Education Program. The satellite was opened and reached out to the Oakland community until about 1977. It was through Brad's influence that the Black Panther Party suppported the 504 sit-in demonstrators by providing food nearly every day. Brad participated in the sit-in the whole time and was selected as a member of the Washington contingent. Brad had multiple sclerosis. [Ken Stein]
James Ludvall
Denver, CO

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Lockhart Follin-Mace
Raleigh, NC, March 16, 1942 - November 22, 1992. Lockhart was the Executive Director of the Governor's Advocacy Council for Persons with Disabilities, North Carolina's Protection and Advocacy agency from its inception to her death. Respect was what Lockhart was all about. Lockhart respected you, she rooted for you and did everything within her power to help you become successful. Lockhart put herself on the front lines of advocating for North Carolina's disability community. She led because she was a leader, the advocate's advocate. She believed in the disability community of which she and her husband, Ron were a part of. Those that knew Lockhart and Ron understood their great love and devotion, to each other, and the disability rights movement. Dear Lockhart, can it be almost seven years since you left us. I can close my eyes and still hear the laughter in your voice as you shared your secrets with me. Oh how I have missed you dearest friend. When you left us the party stopped and the lights went dim, never to shine as bright as those days gone by.... [Cynthia T. Harton, A friend of Ron and Lockhart Mace]
Ron Mace
Ron Mace was a nationally and internationally recognized architect and industrial designer, and a great pioneer at the greatest of all frontiers: The expansion of the quality of life. His dynamic, visionary concept of universal design was an early corner stone of what has come to be a revolution to create a culture that is constructed to empower all people to fulfill their God given potential. He died at his home in Raleigh, NC [JFA]
Kirk MacGugan
San Francisco, CA
Bert MacLeech

[Sent August 26, 1999] Bert MacLeech, senior and disability rights activist, is dead. He was 90 years old. Lillibeth says, "I will miss Bert terribly, like would many many people. For five years since I met him at an IHSS meeting, he has been one of my closest buddies and revered elder. He saw me off to my Adult Ed classes at the UCLA extension at the World Trade Center. He was always present at all IRAPS, IHSS coalition meetings and anything related to IHSS."

Bert had passion for the cause--among his last activities were as a speaker at our IHSS rally in front of the Governor's office just three weeks ago. For that rally, he gave a donation of $25.00 for transportation. He called a meeting of the PASC (Personal Assistance Services Council) Communications Committee on the 19th of August. He left me messages on the phone giving me my last assignments from him. I can still hear his voice ringing in my ears, along with the loving call of my Grandma. Losing two of the best people in my life in the same week is almost too unbearable. But just when I'm about to grieve, the example of Bert comes to mind. We met Bert almost right after he lost Pearl, his wife of 47 years He said it repeatedly that we all gave him a new reason to live. [Lillibeth Navarro & David Howell]

Milton Marks
Former California state Assemblyman, Judge and Senator, this affable man was a beloved fixture on the San Francisco political scene. He was elected to the state Senate in 1967, a job he held for 30 years -- as both a Republican and Democrat -- until term limits forced his retirement. He was a vigorous advocate of civil rights, including gay and lesbian rights, pushed laws to expand public housing and to protect the environment, steadfastly opposed the death penalty and defended a woman's right to an abortion. The first--maybe the only--politician to champion the rights of those with Multiple Chemical Sensitivities. [Barri Boone and Sue Hodges]
Ernest Marshall

The DEAFDIGEST dedicates this issue (Volume 4, Number 8, Sept. 26, 1999) in memory of Ernest Marshall, Bronx, NY, a pioneering deaf film maker who passed away at the age of 89. A house painter by vocation, but by avocation he was many things and much more - a film maker, an entertainer, a raconteur, a loyal deaf club member, and what have you. A colorful character, Ernest epitomized what deaf culture was all about - these Friday and Saturday night gatherings at various New York deaf social clubs. Despite never holding a driver's license he rode the subway - a long ride from Bronx to the Long Island Club of the Deaf in Queens for his weekly chore as projectionist of Friday night captioned movies. He retired from this chore after featuring the 1000th film.

He harbored a life-long regret - never being able to attend Gallaudet University. He wanted to, and he was academically able, but unfortunately family money just wasn't there in the depression years. He served as a School of Hard Knocks mentor to the DEAFDIGEST editor way back in the early sixties. Thank you very much, Ernest for your huge contributions to the Deaf Culture. [Barry Strassler]

Curtis Mayfield

Curtis Mayfield died on December 26th. He was one of the most important soul singers, songwriters and music producers from the 1960s on. Some of his songs were "People Get Ready," "We People Who Are Darker Than Blue," "Mighty, Mighty," "For Your Precious Love" and "Choice of Colors." He sang his 1964 hit "Keep On Pushing" with the Impressions. As a producer he worked with the likes of Aretha Franklin, the Staple Singers, and Gladys Knight and the Pips.

In 1990 Mayfield became a quad as a result of a lighting scaffold that fell on him on a concert stage in Brooklyn during a performance. In 1996, his most important work post-accident was released. It was a new album with a song titled "Back to Living Again." One time he said, "I'm a great believer in the thought that 'It might not come when you want it to, but it's always right on time.'"

He's the only quad I know of so far to get a Grammy Lifetime Achievement Award, a Grammy Legend Award, and induction into the Rock and Roll Hall of Fame. [Rev Rus Cooper-Dowda]

Raymond McCarthy
Ray was a wheelchair user and Director of Disabled Services for Catholic Charities of the East Bay, from about 1978 to 1990. He was a founding member of the Oakland Commission for Disabled Persons in 1980, and served in this capacity for about six years. He was also a tireless advocate. [Logan Hopper]
Irene McConnell
Gray Panther, member of the Access BART Coalition and a local teacher of braille, Irene was an indefagitable seeker of knowledge and advocate for the blind, the elderly, the disabled. [JN]
Earl McKeever
Earl was a native of Orinda, CA who came to CIL in 1975 as an on-the-job training client with the Department of Rehabilitation. Friends remember that Earl came to CIL with one of the largest, individualized desks that anyone had ever seen. During his years at CIL, Earl undertook client intake and recordkeeping, contract administration, and data collection to write reports to funding agencies. He participated in the 504 sit-in. Friends describe Earl as a man with an outstanding twinkle in his eye and a glow which reflected his joy of life no matter how hard life may have been at the time. He had a great sense of humor shown by his love for puns and his constant use of them. Earl was a brilliant man with an orderly mind who supervised with a preciseness and a tidiness. He loved to play Scrabble. Earl belonged to the Baha'i faith and was an active member of that community. [Ken Stein]
Jack McCloskey
A wounded and much-decorated veteran of the Vietnam War who quietly spent the rest of his life trying to ease the pain from that war, Jack died in February 1996 at the age of 53. At the time he joined the 504 Sit-in, Jack was the Executive Director of the Vietnam Veterans organization, Swords to Plowshares. He was in the building during the entire occupation and was a member of the Washington DC delegation. Active in the anti-war movement, particularly Vietnam Veterans Against the War (VVAW), he also was a catalyst in the infant, early 1970s movement that dealt with such issues as the then-unrecognized post-traumatic stress disorder, alcoholism, suicide, joblessness and other problems Vietnam veterans were facing. Jack brought the perspective of veterans with disabilities to the sit-in, and his warmth and genuine love of people touched all of us. [Ken Stein]
Scott McVey
Denver, CO
Marlen "Tinker" Merritt

Tinker, a high level quad, came to Berkeley in '74 as a teen ager to go to CAL. He lived briefly in the 'Crip Ward' at Cowell Hospital on the UC Campus. That facility closed at the end of spring semester '75 and he, with about a dozen other disabled student residents, moved into their own apartments off campus. He excelled in Math but left CAL to attend the Computer Training Program sponsored then by the Center for Independent Living in Berkeley. He was a natural at that craft and breezed through the one year program even though he was frequently absent from class with physical problems. He was hired as a Programmer by a large San Francisco firm and worked there until he became confined to bed and a lingering death.

Tinker came from a border town in Southern California where his father was a Police Officer. His teen years were devoted to racing hot rods but his Spinal Cord Injury ended that sport for Tinker. He was always ready for a party and was a friend to all. [Glen Vinton]

Janis Mickins

Dear Friends:
I am grieving the passing of a very special friend, Janis Mickins. She died unexpectedly early in the week of October 2, 2000, from complications from pneumonia. I knew she was sick. We had spoken just the week before. She would call me often in the morning and say, "Good morning, Sunshine! This is Janis! How are ya, Pumpkin?" I rarely saw her without a smile on her face, a big, all-encompassing one. She was such a wonderful support in my life. I just never thought she would be gone. I could not imagine a day without Janis in it. I know she would not want me to grieve or cry. She was a Buddhist and felt she had a wonderful page to turn in the book of her life when she died. But I'm not on that page, yet. So I will think of her whenever I see chrysanthemums, which are special to me anyway. I will see her wonderful smiling happy face with each sunrise, because mornings were special to us. I will remember that wicked gleam in her eye when we were up to something, probably political.

Janis was a member of the Oakland Mayor's Commission on Persons with Disabilities and also of the Public Authority for IHSS Advisory Board, and also served on the Service Review Advisory Committee for East Bay Paratransit. [Sue Hodges]

Jose Moriera
Chicago, IL
Joseph Moriarty
Dunbar, WVA
Christy Morrison

I regret to inform the readers of this message that Christine "Christy" Murray Morrison of Arlington, Virginia died suddenly on Wednesday, March 29, 2000. Those who knew Christy will remember her as an exceptionally high-spirited and lovely woman who favored the adjective "bubbly" and the nickname "The Wild Panther" when describing herself. She was a very special individual who gave freely of herself and made a deliberate point of reaching out to and befriending those persons for whom she felt others lacked empathy or compassion.

Christy had just completed her dissertation for her Ph.D. in psychology less than one week before her death. It is entitled, "The Psychosocial Adjustment of Men to Spinal Cord Injury." These are the words she wrote last year in an advertisement seeking subjects for her research: "I am a person with a disability who is in the process of completing a Ph.D. dissertation on spinal cord injury (SCI). I am looking at how attitude about self and belief about perception of control affects social and vocational adjustment of men with SCI. In addition to my study, I have been active in disabilities advocacy. I have developed two Empowerment Groups (cross-disability) with the help of my peers, one of which is running out of an Independent Living Center. The group is guided by 'The 12 Articles of Empowerment,' which WE created. I wrote Article 11, PERSISTENCE: 'We pursue our dreams with vigor without ever giving up.' My dream is to finish my Ph.D."

Christy was the founder of a total of three Empowerment Groups in the Northern Virginia area, including those at the Unity Club, the disAbility Resource Center, and Stevenson Place, where she was employed as a mental health counselor. Christy was also one of the founders of a support group at the Unity Club called "Messies Anonymous." Here are the 12 Articles of Empowerment that she initiated:

The 12 Articles Of Empowerment

by Christy Morrison and the Empowerment Group

  1. VOICE: WE make our needs be known by expressing our concerns.
  2. SELF-ESTEEM: WE express ourselves to show how much we like ourselves.
  3. CONTROL: WE take responsibility for our actions and do not allow ourselves to be victimized.
  4. ASSERTIVENESS: WE channel negative circumstances into positive outcomes.
  5. PROACTIVE: WE identify, plan and move toward attainment of a stated goal.
  6. BALANCE: WE strive to achieve balance and serenity in our lives.
  7. POSITIVE: WE focus on our personal strengths and abilities; and on the gifts that our disabilities offer.
  8. EXAMPLE: WE affirm life by implementing changes. WE are what we are by doing what we are by doing what we do.
  9. STORIES: WE share our experiences to give hope to others.
  10. INDEPENDENCE: WE do as much as we can for ourselves.
  11. PERSISTENCE: WE pursue our dreams with vigor without ever giving up.
  12. ADVOCACY: WE, the Empowerment Group, resolve to implement a plan of action, either in written or oral manner, which reflects The 12 Articles of Empowerment.

Christy encouraged the widespread dissemination and use of The 12 Articles of Empowerment. It was published for national distribution in the March/April 2000 edition of Consumer Supporter News, a publication of the National Mental Health Association's National Consumer Supporter Technical Assistance Center. A web site is being planned to make her work available on the Internet. You can help honor Christy's memory by publishing The 12 Articles of Empowerment in your organization's newsletter or journal. [Brian Coopper, via Charlie Buck and the Disability News Service]

Paul Morrow

Paul Morrow died Dec. 20, 1999 from injuries suffered when he fell from his van. Paul, a high-level quad, came to Berkeley in '78 from near Hartford, CT. He was active in the Disabled Student Program that provided wheelchair repair, attendant referrals and advice to the disabled student population. In those days the wheelchairs had limited range and the hilly campus consumed battery power at a very rapid rate, the campus buildings were only partially accessible and curb cuts were a recent innovation. Just getting to class was a constant challenge. Paul overcame all of these challenges and graduated with a degree in Sociology.

After graduating he got involved with the Center for Independent Living that was starting to deliver services to non-students. It too was in the formative stages and relied heavily on volunteer labor. He served in a variety of volunteer positions, including the recruiting, training and placement of Personal Assistants. Paul also attended JFK University in Orinda, CA. There was no public transportation to JFK so he commuted via the Freeway to Orinda in a van that had been modified with very sophisticated hand controls that let him drive from his wheelchair. Another challenge overcome. Until recently he served on the Board of Directors at Easy Does It and when confined to bed would participate in meetings by telephone. He was a member of the Lions Club.

He was plagued by injuries in recent years that required lengthy healing periods. A sad and notable example happened a few years back when he took Bridget, his gentle Golden Lab, out for a walk with the dog's leash wrapped around his wrist. The dog suddenly took off after a cat and ripped Paul's arm out of his shoulder. Recovering the use of his arm required a lot of surgery, was painful, and never fully successful. At the time of his death Paul had just completed an unrelated series of operations and was very optimistic about the future. Paul had many friends in California. He'll be missed by all of them. [Glen Vinton]

Mayor George Moscone
George Moscone died in November 1978, while Mayor of San Francisco, after being shot by San Francisco Supervisor Dan White. Moscone served as a San Francisco supervisor and a state senator before being elected Mayor in 1975. As a state senator he pushed for a school lunch program, and perhaps his greatest accomplishment was working for passage of California's gay rights bill. During the 504 sit-in, Mayor Moscone visited the HEW offices several times in support of the demonstrators. He met and confronted HEW officials at the federal building to get shower heads installed in the restrooms. As Mayor, Moscone had the city purchase four shower hoses to be used on sink nozzles, but only one was installed before the Regional Commissioner of HEW Joe Maldonado stopped installation. Moscone said that was the biggest outrage of his 17 years in office. Moscone has been described as "a man moved mostly by his deep sense of injustice needing to be righted" by Joel Gazis-Sax in Tales from Colma-The Martydom of Mayor Moscone. He remembered his modest up-bringing and tried to help the average citizen maintain his home, feed his children and get recognition for his contributions to the city of San Francisco. [Ken Stein]
Pat Moser

If I were allowed a brief peak at Heaven, I would probably see my dear friend Pat Moser checking out space travel up there; he would be riding, this time, without an inhaler in his pocket, but still with the characteristic concentration on whether the system works for the majority of celestial travelers. That is how Pat lived his life--solely dedicated to the cause of accessible, safe and efficient public transportation for everyone. For one, he was instrumental in the advocacy effort to get low-floor accessible buses for Los Angeles. [He died on the 28th of December, 1999]

I met Pat in the late 80's when I was trying my hand at community organizing in Los Angeles. He acknowledged me publicly with his kind words at the first protest I organized against Deukmejian's budget cuts. Pat was a very tall man with a gentle spirit. He had chronic problems with severe asthma but he kept himself constantly busy and involved with the community and with his other beloved dedication to the Democratic Party. He served on the Democratic Party's Central Committee with Bill Zuke, another dedicated disability rights activist from Montrose.

Pat welcomed me to the grassroots disability community with tremendous generosity--he took it upon himself to teach me to ride the public bus at a time when there were so many of them just routinely ignoring us at the bus stops. He accompanied me to many, many bus trips and the two times I almost fell on the pavement from the wheelchair lift, Pat was there to grab my chair. Pat and I worked together on newsletters, we went to many MTA meetings together, he was always at our protests, chanting, walking with signs, talking with the media.

Pat was an expert--a walking transit encylopedia. He provided the community with scholarship and leadership on transportation. In the early 90's, he founded the Southern California Transit Advocates, a formidable transit advocacy and activist group that religiously monitors the MTA and other local transit systems. Pat knew his bus numbers and all of us in his circle would call him about the bus routes when the 800 number proved inadequate.

Pat was equally dedicated to the improvement of In-Home Supportive Services and often volunteered to take the meeting minutes of the Coalition for IHSS Reform. He wrote letters, made phone calls, testified at numerous meetings about the issue. Pat was known in many political circles and the members of the Los Angeles County Board of Supervisors know him from his regular testimonies on transportation and IHSS.

I will miss Pat at our meetings, at our protests, at my little birthday parties. But so will the rest of us. Pat has touched our lives in ways we would not even know because of the tremendous work he did for transportation and many other issues. I will have to control the tears the next time I ride an MTA bus. But before I roll into the lift, I'll take a deep breath, look up at the sky and mutter to Pat, the lovely little message he scribbled on his Christmas card, "The world is a much better place because of you!" [Lillibeth Navarro]

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